Keep in mind that these questions shouldn’t be limited to a one-time discussion. Instead, consider these as topics to occasionally revisit during the course of an illness.

It might also be helpful to work with the tools in the Beliefs and Values toolkit.

1. How do you feel about needing more help as your illness progresses?
2. Is it OK for family and friends to help with your care, as you need it? How do you feel about getting professional help? Is there anyone in particular you’d like to help? Anyone you’d prefer not to be involved?
3. Would you consider moving out of your house if your care depended on it? Do you have a preference for where you’d consider moving (a family member or friend’s house, a nursing home, assisted living, etc.)?
4. Would it be OK for someone to move in with you if your care depended on it? If you had the choice, given the financial and practical circumstances, would you prefer it to be a family member or friend, or a professional caregiver? Do you have someone in mind for this role?
5. How do you feel about getting help with your financial tasks, like paying bills? Is it OK for a family member to take responsibility for this? Would you like to consult with a financial planner or attorney?
6. How do you feel about getting help with intimate things, like bathing, dressing, and going to the bathroom? If you had a choice (given financial considerations), would you prefer that a professional or family caregiver do these things? Is there someone in particular you’d prefer to handle intimate care? Is there someone you don’t want handling your intimate care? 
7. What activities do you want to keep up as long as possible?
8. At what point, if any, do you want to involve hospice?
9. How much do you want to be involved in making your care plan? (Some people prefer that others make decisions for them, based on their general wishes).