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Location: Blogs CARE TALK |
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Posted by: CommunityManager |
3/4/2008 9:21 AM |
Welcome
Welcome to CareCommunity.
When we began to build this website, one of the first things we did was meet with caregivers. We wanted to know your needs, your feelings, your concerns, so we could figure out the best way to alleviate your stress. We also researched studies and spoke with experts on family caregiving.
Here are some of the things we discovered.
- Caregivers' stress level goes down when they learn how to do a better job as caregivers. Let’s face it—many caregivers are unprepared for all the responsibilities and specific duties of caregiving. Suddenly you are administering a complicated schedule of daily medications, or learning to lift a fragile loved one out of wheelchair, or awkwardly fumbling with a bedpan. You might be making decisions about residential care, crucial medical regimes, or even whether or not to consult with hospice—decisions you feel completely unprepared to make.
So we consulted with all kinds of experts and created a library of easy-to-read articles and interviews that will help you with the many duties and decisions you’re facing. (Just click on the tabs at the top for topics that you want to research.)
Our “Finding Resources” tab at the top right of the screen also allows you to type in topics and find useful information on this website as well as relevant books, articles, agencies, and other websites.
- Caregivers, as well as the people they are caring for, benefit from the help of friends and family members. Even though this is true, we also discovered that caregivers often find it hard to ask friends and family members to help. Many caregivers are waiting/hoping for people to volunteer. Others just don’t know how to coordinate or share caregiving.
Registered members of CareCommunity can create their own "Personal Community" on this website. This Personal Community offers an easy way to invite family and friends into the caregiving. These secure pages let you and invited members access a private group calendar, task list (so friends and family members can see and sign up for tasks you need help with), contact list, message board, updates on a patient’s care, and more.
To create a Personal Community just clickin on “My Personal Community" under the "Quick Links for Registered Users" on the lower left of the screen.
- Caregivers benefit from the support of other caregivers. Many caregivers confessed that at first they were reluctant to join “support groups.” Some were skeptical that it would even help. But ultimately, everyone who sought the support of other caregivers was glad they did.
As one caregiver said, “I never thought of myself as a "joiner.’” But once she pushed through the resistance, she discovered that caregivers’ experiences can be comforting. Sometimes it helps you feel less alone with all the conflicted feelings of caring for someone you love. Other times it helps you gain perspective.
“I saw that many caregivers had it worse than I did,” she told us. “And suddenly I realized I could feel grateful, instead of resentful.”
This kind of “been there” support of other caregivers is exactly why we created the Discussion Forums, Stories and Advice, and a place to “Find People Like Me.” (All “Quick Links” on the left side of the screen.) These are ways you can get the immediate benefits of a support group whenever you feel the need for camaraderie from other caregivers.
More to Come
So that’s why we created all the information and features that you’ll find while clicking around our site. After you register and get a chance to explore CareCommunity, please let us know how we’re doing and don’t hesitate to tell us how we could serve you better. Just post a comment on this blog or send an email to CCManager@enclarahealth.com.
Meanwhile, Care Talk will be a forum for you to find brief updates on what’s happening in CareCommunity as well as current caregiving news, resources, and reflections. Check back soon for the next installment.
For now, thanks for joining us and being one of our pioneers. I look forward to hearing from you.
Take care,
CareCommunity Manager
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Comments (2)
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Re: How We Can Help |
By sjcpony on
4/6/2008 5:45 PM |
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I'm caring for my 84 yr old Mom, and assisting with care for my 88 yr old Mom-in-law with Alzheimer's in a nsg. home. I was blindsided by all of this, as it came suddenly, and it never occured to me that I would be in this position in my late 50's. It's been 5 yrs., and I feel I've aged 15 yrs. in that time. Nothing is as I'd hoped, as I had Pollyanna ideas about their care and well-being. My Mother is wealthy, and planned for this, while my Mom-in-law planned for nothing. My Mom-in-law is now on Medicaid, while my Mom pays for everything except what's covered by Medicare. My Mom is the problem in all this. She has slight dementia from a severe stroke 4 yrs ago, but lives at home. She is totally unable to live alone, and has 24/7 help, in addition to me. We took her keys to the car 4 yrs ago, and she called and ordered another car delivered, and DRIVES with a paralyzed left leg and left hand!!!! She said she'll keep ordering new cars if we take the keys again. She's on high risk ins. due to accidents!! She's nasty, belligerent, argumentative, and determined to ignore all advice and counsel. She should be in assisted-living due to a million reasons, AND she has always been bi-polar and manic depressed. Her equilibrium is awful, and she falls or passes-out often. She won't eat a morsel of food unless I cook it, and she's unbearable to the kind ladies who work for her. They are saints, and have the patience of Job.I tell myself that Mom can't help any of this, and carry stress and anger inside. My sister divorced my Mom years ago, so it's up to me alone. My husband and his sister don't go near their Mom, as she was neglectful to them all her life. Sigh..... She was not my favorite person, but I feel sorry for her now. My heart breaks for both Mom's, but they are like toddlers now. Trying to help them is harder than caring for a toddler. I see myself someday, and wonder how my own kids will act in my behalf. It's frightening to consider since none live in this state. I'm on meds to sleep and cope, but this is all overwhelming my entire life. Thanks for listening.
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Re: How We Can Help |
By daughter on
6/19/2008 8:38 AM |
I can relate to your frustration and I only care for my mother. She is 88 with Alzheimers and Parkinsons and is really becoming a handfull. I have always promised her that I would keep her at home with me till the end, which is what I intend to do as I could never live with myself if I didn't. Let me say it's not easy, she is total care, she can walk some with the walker but she prefers the wheelchair. She has taken a couple really bad falls, so that is the safest way. She has always been independent and strong headed and is even more so today. as they say it her way or no way. I recently lost my job and she doesn't want me working now so I'm trying to work at home on the computer but she thinks she needs me to sit with her, even though I have a caregiver with her 8 hrs a day.You get her up in the morning bathe her get her breakfast, take her to the bathroom change the diaper, and the same at night but just undress and redress for bed. Someday soon she will have to be fed also. She has to get to the car and go everywhere I go. She even wants to know aren't we going anwhere. If we go then she wants to sit in the car and not get out. Please don't feel you are alone, your not!!! I have no one to help but the saint that I'm married to, and my youngest. The other kids don't come by much. They either can't accept her condition or just don't care. She loves to see the grandchildren and great grandchildren but all she does is yell at them and then wonders why they can't wait to leave. I have the same fear as to how I will be cared for in coming years so I'm just putting myself into assisted living. Hope I can afford it. Ha Ha Crying Inside
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