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Journals and Blogs

Use this Journal (also called a Blog) to share your ongoing caregiving stories and updates with others. Your online journal or blog will help readers benefit from your experiences and life lessons. Tell us about your challenges, your insights, the tears, and the special moments.


It's easy. Just click on the "Create My Blog" button on the right, and the website will guide you through the process.

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Most Recent Blog Entries
Title of Entry: If It's Not One Thing.......
By Shamar on 10/8/2008 2:30 PM

Bob is still not back on chemo, yahoo. But it's because he is on an antibiotic for possible pneumonia. The drug must be working. He hasn't had a the high fever and chills for almost a week. He is starting to feel better and even get some of his appetite back. Chemo can really takes it's toll. In fact, one of the doctors believes Bob doesn't have pneumonia but a leison on his lung due to the chemo treatment. I've have mentioned to some close friends that Bob will die from Chemo because he is afraid to live with cancer. But, we each get to make our own life choices and follow our path. I'm so tired from the emotional part of this disease I'm afraid to drive very far or make important decisions. My fuse is short and I'm so irritable, which I try not to show......again more energy and effort. I need some alone time, a quiet afternoon without fixing food and beverages and answering questions. Non-caregivers get the evenings off and even weekends and sometimes take a trip. Caregivers are on all day, al ...
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Title of Entry: A BREAK FROM CHEMO
By Shamar on 9/26/2008 8:56 AM

We are getting a break from chemo because there is a new spot on Bob's liver and the spot on his lung is larger.  So a PET Scan is being scheduled.  Nothing will be done for the lung.  It's a beautiful Indian Summer day in Laguna Beach and we get to enjoy some of it.  Each day is an opportunity to embrace the healthy moments and accept the painful ones as well.  The balance is being able to flow between the shores of pleasure and pain without getting stuck.  "Going with the flow" has taken on a deeper meaning.  I miss him so much

Title of Entry: Today is Chemo so it must be Monday
By Shamar on 6/30/2008 8:35 AM

Every other week I drive Bob to the cancer center for treatment. Everyone is pleasant and happy, except of course the patients that are throwing up. Sometimes I feel like I'm in the twlight zone with IV's, bald people, nausea and everyone walking very slowly. Four months ago Bob was fine now he is in stage four colon cancer. That's a big jump in a very short time.
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Title of Entry: One more thing to do
By Shamar on 6/28/2008 8:42 PM

Friends think I need a support group to deal with this situation. I know I'm doing fine. They want me to make it better and be the leader on how to deal with cancer, but I'm in the middle and just treading water. This isn't a happy time and I can't make it happy and wonderful for anyone. Sometimes I'm angry, sad or just want to be alone. I know that is ok and part of the process, but the additional pressure from well wishers is trying and now I am making an effort in an already full day to appease their demands.
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© Copyright 2008 Enclara Health, LLC
This project was supported by grant number 5R44CA097592-03 from NIH (National Cancer Institute). Its contents are solely the responsibility of the authors and do not necessarily represent the official views of the NIH (National Cancer Institute).