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 Frustrated and without help
 
 5/8/2008 8:44:34 AM
User is offlinegracie0714
1 posts


Frustrated and without help
I am from out of state but visit my dad about 2 times a month. 
I came in Dec. for a normal visit when he got puenmonia. When got out of the hospital and was good, I was about to leave, when he passed out on me. They rushed him to ER and took them 5 hrs. to stablize him.  They discovered internal bleeding and was bleeding out at a fast rate.  After a blood tranfusion they rushed him to a bigger hospital and took care of that.  While recuping in there, he got puenmonia again, and had a slight stroke.  Then they discovered he had cancer mainly in the stomach, but also starting in lungs. When they found out that he wasn't going to have any cancer treatment, they wanted to dismiss him.  So, we took him to a SNF for rehab in late Jan., which went good for 4 days, then he decided not to get up anymore, communicate or eat and drink. So, after talking with his Dr., we decided that Hospice was the route to go.  We took him to a wonderful Hospice House in Feb., with the Dr. saying that he had 2 weeks to 6 months at the most. It was like someone pulled the sheet off his head - he started eating, walking and being "himself" again.  He wanted to go home, so I brought him home 5 weeks ago.  Hospice nurses visit 2 times a week.  But I am about to the end of a short rope.  My patience are thin, I have no help from anyone.  I am 54 and suffer from anxiety attacks, depression, very bad osteoporosis,celiac disease and hypoglycemia and have had to put "me" on the back burner to be a 24/7 care giver.  My home and family life is now in shambles.  Please, looking for some answers on how to handle this!!!  It has been 5 months since I came for that "normal" visit...... 
 7/27/2008 4:41:51 AM
User is offlinereggie
2 posts


Re: Frustrated and without help
Hello gracie0714,
 
Reach out to the Hospice nurses, they should be able to help give you some time for you.  It is so hard when you are the care giver 24/7, I know I am also, plus I work outside the home.  I try to make time for me at least once a week, sometimes it is just a hot bath with candles and music.  Next month, I going to take one night an month and go to dinner with friends, I have to.
 
The hardest step is the first one, but you must make that step.  I hope I helped.
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