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 Brain Injury
 
 4/16/2008 2:52:13 AM
User is offlinedesertphrog
1 posts


Brain Injury
Hello,
I am new to this site and looking for anyone else providing care for someone with a brain injury.  My husband received a brain injury 3 1/2 years ago and requires 24 hour care and supervision.  He is high functioning, but doesn't understand safety issues and is constantly a threat to himself innocently.  He has short term memory loss so is unable to remember daily hygiene and seems to forget what he is doing a lot of the time.  Caring for Bill can be very frustrating at times and exhausting.  I am looking for someone to share and talk with, and am always looking for advice.
 4/19/2008 2:09:14 AM
User is offlineLibbyBrat
1 posts


Re: Brain Injury
Hi there. I responded to you private message.
 
Shadow is often a danger to himself because he can't see well enough. I can't count the number of times I've had to jerk him back from the curb like a 3 year old trying to dash into traffic.
 
The best advice I can give is make SURE you make you time. Maybe after you get him to sleep take a relaxing bath or something like that. Anything like that you can do
 
-super hugs-
 5/3/2008 7:39:19 PM
User is offlineloanjohn
1 posts


Re: Brain Injury
Wow..
I was starting to think I was a bad son cuz I get frustrated taken care of my mom. My mother was diagnosed with dementia, she is only 58 years old but suffered a head injury 18 years ago and doc's say that and her mini strokes is what is progressing this dieses.
I have to lock up her meds and remind her what day it is. She also 2 months ago spent 30k on credit cards and cking account. She ordered everything she couls from QVC and HSN and catalogs...
So Me and my wife moved her in with us and my 5 kids.. I am finishing the basement right now. I hope that by having her own space it will make it easier on me and her.. Don't get me wrong the basement is a walkout and 1700 sq ft..I'm finishing it nicely but still feel bad cuz,   well its a basement...
Sometimes I am so mad that this could happen to my mom. She is the sweetestg person and she actually realizes that she is losing her mind and cries sometimes. It breaks my heart!!!
I feel all alone.. Nit sure what to do. so I just do the best I can.. I have a sister but she hasn't called in over 18 months to ck on her.. So Its just me and my wife who is pregnant and was just diagnoised with cancer 3 weeks ago...I run from doctor appt to dr appt.
Im starting to rambel SORRY!!!
hope to talk soon
 7/15/2008 1:56:34 AM
User is offlinejcostello
1 posts


Re: Brain Injury
Hi,
I understand your frustration.  My fiance received a brain injury about 9 months ago and also requires 24 hour care and supervision.  Luckily, he has short and long term memory, but suffers from paralysis to his left side.  It's all neurological we're told and he's doing his best in therapies to get his left leg back.  Unfortunately, the facilities he was in let his arm progress into extreme spacticity and we are trying to get the arm and wrist out before we can even have hope of regaining movement.  It is very hard on the both of us.  Our lives changed overnight and all we can do is our very best every day to make the most of life now.  We try to laugh at everything we can.  It really does help us cope.  I too need to remind him of everything, set his schedule, manage getting him in/out of bed, do as many of therapies possible with him, meds, helping him eat, the list goes on.  Sometimes I feel like an island because we have no financial income - I have to stay home with him because we can't afford a caregiver - and the family dynamics on his side are fairly unwelcoming, especially to me.  On the flip side, we have amazing friends and my family is very supportive (although they live on the opposite side of the country as us).  I would love to stay in touch with you.  Its nice to have someone who understands the struggles every day.  I wish you the best of luck and send much love your way.
 8/25/2008 4:22:03 AM
User is offlinebeach
2 posts


Re: Brain Injury
   It always makes me feel better to know that someone else is in my shoes. My husband had his brain injury 7 years ago and also requires 24 hour care.  My heart goes out to you.  You must take time for yourself. I leave him in bed a little longer on Saturday morning and take a nice long bath. I also learned I got too tired when I put him to bed late so I put him to bed at 8:00 and he watches TV and I have some quiet time before sleep.  My husband goes to a daycare 5 days a week so I can work.  It's not perfect but you have to learn to choose your battles.  No one can know what it's like unless you've been there so enclosing a big hug and believe it or not it does get better! 
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