Dear CareCommunity,

 

Due to the volume of questions we receive for our “Ask an Expert” forum, we can’t post and answer every question. The following question seemed especially appropriate for the community to answer. There is no right or wrong here. 

 

So please post your responses. Feel free to commiserate, share your opinions, or offer whatever advice you can, speaking from your own “been there” experiences.

 

Thank you,
CareCommunity Manager

 

 

"No One Gives a Hoot"
My hubby has been paralyzed for the most part of the past 20 yrs. -- 99% paralyzed. Over the years, his 6 siblings and my 6 siblings have just stopped calling, coming, sending cards, etc. They have completely omitted themselves from our difficult lives even though he and I remain positive and upbeat and friendly. Now, 2 of our 3 children also no longer come or call. Except for 1 wonderful daughter, NO ONE GIVES A HOOT. I am very hurt by the lack of compassion given the fact he cannot walk, talk or eat. He can still think and feel. Holidays are sometimes very lonely and neither one of us deserves this cruel cold shoulder. It’s been 15 years since our sibs came or called and almost a year since our 36 & 39 yr. old kids have come to see their dad. I called a priest and went in for 4 council sessions. NO understanding or advice. Seems there is nothing to do about others selfish ways. I can take it. But my hubby should not have to suffer even more. I am so ashamed of our families (also with the priest and counselor who did nothing to ease the pain). Any comments or direction would be greatly appreciated.